In the Legislative Assembly on March 4th, 2020. See this topic in context.

Fetal Alcohol Spectrum Disorder Awareness Supports for Parents
Members' Statements

March 4th, 2020

Page 484

Rylund Johnson

Rylund Johnson Yellowknife North

Thank you, Mr. Speaker. Many of our conversations around Fetal Alcohol Spectrum Disorder, or FASD, are centred around making sure mothers stop drinking during pregnancy, but, in fact, there is much work to be done. The science has shown for years that there is a causal relationship between FASD prevalence and fathers drinking. Putting all of the responsibility on the mother means we are not fully addressing the problem. We need to build up support around our mothers, not isolate them.

The Foster Family Coalition of the NWT has done great work flipping the narrative around, and I will table a report by them later today, but it isn't the end of the conversation around FASD awareness. There is much work to be done to prevent FASD and to end the stigma for those living with it. National studies suggest that 4 percent of our population, or roughly 1,800 people, are living with FASD. These people need support and structure in childhood and throughout their entire lives. We need to ensure that our front-line workers are sympathetic to the complex needs of these individuals, not just our healthcare workers but our teachers, our Housing Corporation employees, and our general population. The most effective way to do this is through advocacy and continued conversations that break down stigma. I will stand in this House and continue to talk about FASD awareness for that reason, to break down stigma, Mr. Speaker.

Currently, the GNWT relies on data from the rest of Canada, but I wonder how that information holds up to northern realities. We don't have any data on prevalent rates in the NWT, and so we can't know if we are successfully addressing this issue. It is difficult to advocate for an issue when we are only guessing at its scope, Mr. Speaker. In 2018, the department released its Disability Action Plan, which indicated they would review existing data sources to validate the prevalence of risk factors in incidents of Fetal Alcohol Spectrum Disorder. Without northern data, I don't see how we could possibly achieve this. I believe it is important that our department implement, at the very least, some basic research on prevalence. We've come a long way in the last couple of years, developing an adult FASD diagnostic clinic, and there is even training going on in Yellowknife right now on FASD and neurodiversity for social workers and caregivers, aimed at improving client relationships.

It's good work, but we have to keep going, Mr. Speaker. I would love to see more screening for those in the justice system, reduced wait times for youth diagnostic clinics, housing strategies, and stronger language in our departmental action plans around FASD. I hope we are on track to some of these things, but I will have questions for the Minister of Health and Social Services today. Thank you, Mr. Speaker.

Fetal Alcohol Spectrum Disorder Awareness Supports for Parents
Members' Statements

Page 484

The Speaker

The Speaker Frederick Blake Jr.

Thank you, Member for Yellowknife North. Members' statements. Member for Frame Lake.